Be Seen. Be Heard.
RARE®, a registry for patients with acral and mucosal melanoma, provides a free, interactive, web and mobile-friendly tool to share information and experiences, disease history, advance research and awareness, and get potential matches to clinical trials.
Your story—the story of your health, of your history, of your experiences— hold power: the power to inform, the power to connect, and the power to drive research forward for rare melanoma subtypes.
RARE® is an application that will collect data from acral and mucosal melanoma patients or designated caregivers via website with the goals of advancing medical treatment and quality of life.
Participants who maintain consent will receive notification about clinical trials for which they are potentially eligible based on their type of melanoma, sites of metastatic disease, and other data entered into RARE®.
The RARE Melanoma Registry is an initiative led by the Melanoma Research Alliance. MRA was formed in 2007 and is the largest non-profit funder of melanoma research worldwide. Since its founding, MRA has committed 143 million, and leveraged over $415 million from outside sources, to fund life-saving melanoma research needed to achieve its mission of ending suffering and death due to melanoma.
MRA thanks many generous supporters who have helped make the registry possible, including the Anna-Maria and Stephen Kellen Foundation, Alkermes, and Merck.CureMelanoma.org