The RARE Registry Can Help Advance Your Research

The Melanoma Research Alliance aggregates data from patient-reported outcomes, medical records, and biospecimens to form a more complete picture of individuals with acral and mucosal melanoma. We can assist your research efforts in a number of ways:

  • Provide access to previously collected RARE Registry data,
  • Help collect new data from RARE Registry participants,
  • Help you find participants for your own study, and
  • Release new surveys to help you better understand specific aspects of living with acral or mucosal melanoma.

We are committed to sharing RARE Registry data, in order to foster engagement with these rare melanoma subtypes. Please email to learn more about accessing data from the RARE Registry. We look forward to working with you to help advance melanoma research.