To guide the RARE Registry, the Melanoma Research Alliance created an Oversight Committee comprised of patients and caregivers, as well as a multi-disciplinary group of medical advisors including dermatologists, pathologists, oncologists, scientists, and surgeons. The medical advisors’ research interests span bench research, epidemiology, quality of life research, translational research and clinical trial development.
Co-Principal Investigators
Scientific & Patient Advisors
Boris Bastian, MD—University of California San Francisco
Trena Brown—Patient Advocate
Elizabeth Buchbinder, MD—Massachusetts General Hospital
Chris Carr—Patient Advocate
Richard Carvajal, MD—Northwell Health
Judith Colin—Patient Advocate
Kasey Couts, PhD—University of Colorado Anschutz School of Medicine
Julie Dewey—Patient Advocate
Marc Hurlbert, PhD—Melanoma Research Alliance
Patricia Janiak—Patient Advocate
Amy Jardon—Patient Advocate
Jason Luke, MD—Strand Therapeutics, Inc.
David Marx—Patient Advocate
Sapna Patel, MD—University of Colorado Anschutz School of Medicine
Vito Rebecca, PhD—Johns Hopkins University
Jessica Scales, PhD—Melanoma Research Alliance
Yevgeniy ‘Eugene’ Semenov, MD, MS—Massachusetts General Hospital
Alex Shoushtari, MD—Memorial Sloan Kettering Cancer Center
Jonathan Swingle—Patient Advocate
Alfonso Waller, MD—Patient Advocate
Eileen Walther—Patient Advocate
J.B. Ward—Patient Advocate
Janet Yannelli—Patient Advocate
Iwei Yeh, MD, PhD—University of California San Francisco