Rare Registry Updates
Posted: 2023-08-17Updated: 2023-08-23
Join the RARE Registry team on August 23 at 12:30 pm ET to hear updates on data from the first 100 participants of RARE! During this special webinar, you’ll meet the RARE Registry staff and some of the RARE patient advisors, learn about some of the exciting data collected so far, and hear about new features available to RARE participants.
Posted: 2022-09-22Updated: 2022-09-22
Despite the tremendous progress in treating melanoma, approximately one third of patients don’t benefit from currently approved therapies. This includes the majority of people with rare forms of melanoma — melanomas that develop in the eye, nailbeds, palms, soles of the feet, and various mucosal membranes. Patients facing these subtypes tend not to respond as well to current treatments as patients with cutaneous melanomas that arise on sun-exposed skin. But as investigators continue to chip away at understanding what causes these melanomas and how they differ from UV-driven cutaneous melanomas, the hope is the better understanding they reap will be sown into improved treatments for these patients.