Advancing RARE Registry Insights: The Power of Your Data
The Melanoma Research Alliance is excited to share a poster presentation called RARE: A Registry for Patients with Acral and Mucosal Melanoma which was presented last week at the Society for Melanoma Research (SMR)’s 20thannual Congress. SMR aims to enhance communication among melanoma researchers by organizing annual research congresses, emphasizing new research results to engage both basic and clinical researchers. In addition, SMR works to promote collaboration among organizations focused on prevention, screening, and surveillance, facilitate partnerships among major research groups, and represent the melanoma research community to the public and funding agencies.
This year's conference, hosted in Philadelphia, PA, had over 600 attendees from around the world. Several members from the MRA staff attended and presented recent RARE Registry data, increasing awareness and interest among clinicians, researchers, and participants.
Just over one year since launch, the MRA team shared updates into how your survey data is taking shape as the RARE Registry grows, illustrating how the synergy of individual data points coalesces into a rich tapestry of knowledge. Participant data is a driving force for future advances in acral and mucosal melanoma research and emphasizes the collective strength of our community. Together, we are not only building a comprehensive understanding of these rare melanomas but also paving the way for more appropriate interventions, improved patient outcomes and disease management, and a brighter future for patients and families facing acral and mucosal melanoma.