Can I share my information from the RARE Registry with my care team and/or family members?

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Can I share my information from the RARE Registry with my care team and/or family members?

Can I share my information from the RARE Registry with my care team and/or family members?

Of course! The RARE Registry offers you the option to request a PDF version of your information that can be easily shared with your care team or family at your discretion. You can export your survey responses by logging into your RARE Registry account, selecting “Manage Account” and then “Export Your Data.” 

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