How does the RARE Registry protect my privacy and personal health information?
We take your privacy very seriously and have policies and processes in place to safeguard your identity and protect the health information you share with us. Your personally identifying information such as name, date of birth, etc. and other health information are only shared with the MRA staff who has special training in human subject research. Any personally identifying information is removed before sharing with researchers or other third parties. Please review the informed consent document for more information.
If you have questions or concerns, please contact us at RARE@CureMelanoma.org