How is the RARE Melanoma Registry different from other registries?
It’s by and for patients with acral & mucosal melanoma: The RARE Registry is the only registry specifically focused on patients with acral & mucosal melanoma and is formed and led by patients and caregivers with these rare subtypes.
The RARE Registry is interactive: Using the RARE Registry, you can provide valuable data to researchers through simple surveys that capture details about your journey with acral or mucosal melanoma. The RARE Registry is then able to provide you with regular personalized insights and alerts about your condition – including articles, resources, and other tools from the Melanoma Research Alliance.
The RARE Registry is web-based but is mobile friendly: Many patient registries don’t think about the experience of USING the tools – the RARE Registry is different. From day one, we have focused on user experience and are proud to offer you the easy-to-use web-based site that is also mobile-friendly.