If I have uveal melanoma, can I join the RARE Registry?
The RARE Registry is exclusively for patients with acral, mucosal, and non-acral cutaneous melanoma. However, there are other registries that focus on uveal melanoma that you can join, including:
- Melanoma Research Foundation’s CURE OM (the Community United for Research and Education of Ocular Melanoma),
- A Cure In Sight™’s Insight Patient Registry for patients with ocular melanoma (also known as uveal melanoma).
- Global Uveal Melanoma Patient Registry (Richard Carvajal, Columbia University)